Today is the day to shed light on rare diseases world wide. In the United States, a rare disease is defined as a condition that affects...

Expectations and Vacations just really dont mesh...and then you add kids... and then you add Duchenne. Need I say more? We thought it was...

Happy Valentines Day my friends. Its been a while...but here I am...still going strong. Day in and day out, so many things to do, to see,...

Cough Assist T70...the name of the first machine we have introduced to our sons in the daunting reality of what Duchenne is doing to...

Do you have those moments when you just cant stop thinking about all the things you coulda did, you woulda did, or you shoulda did? I...

Reality is the very thing that is always testing my faith. The reality of this broken World, the reality of all the broken people in this...

Only eight days into the the new year and I have already tossed in the towel about ten times. I already feel defeated. I have already...

2018. Where do I even begin. I am over you. But. Because of you, I sit here and reminisce...write...reflect...cry...laugh...think...sing....